A midwest mom shares and reflects on the love for her dear son and the challenges of everyday life with a severly disabled teenager and life in general. Writings on this site are copyright the author 2006-2008.
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The school van drove up into our driveway. Inside the van was Dear Son, his classmate Jen, his medical assistant and his teacher. They had stopped by to take pictures of each child in front of their home for a school project. I happened to see them and...
As I mentioned previously, after I left on Sunday, Dad stayed with Dear Son and they didn't perform any deep suctioning. I spoke with Dad and they had not done anymore suctioning down his nose nor did they suction him at all, even after Dad asked. On...
We just got home tonight. I pushed hard for Big Academic Medical Center to release him today despite the fact that he was running a fever that kept increasing all day. When we left, it was 104 however everything else seemed fairly stable, blood...
Dear Son-Marks on his chest are from the central line. Bruises on his inner arms are from trying to locate a vein for the IV.
Things have gone south since I last wrote. On Friday or so, Dear Son began running a fever. He ran a fever for over 24 hours...
Since my last post, Dear Son has fluctuated quite a bit. After the vent tubing was removed, he had repeated issues with desaturations while on the high flow nasal cannula. On Tuesday afternoon, he crashed again and desated around 80 or so (you should...
Dear Son is still in the Pediatric Intensive Care Unit at Big Academic Medical Center. Since I last posted on Thursday, a lot has happened.
11/12/09 Thursday~On Thursday, his chest x-ray looked the best since he's been in. They were able to lower the...
